Our EndoVoices Campaign

Taking Action on Endometriosis

If you’re seeking an endometriosis diagnosis, or help for a similar condition, coming to your appointment armed with information that can assist your GP to understand your issues can help to expedite a diagnosis.

Our free downloadable endometriosis symptom tracker helps you to monitor your health week by week. Use it to record symptoms and to track your cycle. Make note of the dates, volume and duration of your flow, plus any symptoms you experience throughout the month, including premenstrual and mid-cycle symptoms.

This kind of detailed information is a great tool for consultations with doctors and specialists, but it can also help you identify patterns, understand what’s ‘normal’ or typical for you, and enable you to be a better advocate for yourself.

Download your free endometriosis symptoms tracker here.

Download the tracker

Getting a diagnosis

Suspect you might have endo? Click the letters below for our tips for a STRONG diagnosis.



Know what to look out for. Common symptoms of endometriosis are:

  • • Pelvic pain
  • • Period pain that prevents you doing your normal activities
  • • Digestive issues
  • • Pain when urinating or pooping, or blood in your pee or poop
  • • Pain during or after sex
  • • Heavy periods

Source: www.nhs.uk/conditions/endometriosis


Track your symptoms

Keeping a record of the symptoms you experience and their frequency can provide helpful context to healthcare professionals when you’re looking for a diagnosis.

Try our FREE endometriosis symptoms tracker to help.

Download the tracker


Research endometriosis

Before you see a doctor, research endometriosis to guide you in the information you need to provide your GP and the questions to ask.

Here are some great resources to get you started:

Endometriosis UK


The World Health Organization


Endo So Black


Online communities

Joining patient groups such as endometriosis Facebook groups can be a valuable resource in helping you find specialists in your area, and learning from experiences of others with similar conditions.

Endometriosis UK’s online community, Health Unlocked, is a great place to start.


Never back down

Self-advocating can be challenging, but you know your body best. It shouldn’t be the case, but diagnosis requires resilience, so don’t be afraid to ask questions or raise concerns if you’re dissatisfied with your care.


Get a second opinion

If you’re not finding relief with your symptoms or diagnosis, chat to another GP or contact an endometriosis specialist for help.


Advice from our endo contributors

“If you suspect that you have endometriosis, my biggest advice would be to push your GP, go and see you GP and push for a referral” – Becky

“Listen to your body and persist and get the GP to do the necessary investigations so that you have an early diagnosis” – Helen

“Persistence is the biggest thing. It shouldn’t have to be, but it is” – Georgie

Campaigns | By Onyx Health | 30th March 2023

Lynsey’s endometriosis story

Read Time: 4 minutes   Endometriosis affects 1 in 10 women and those assigned female at birth in the UK. That means one of...

Onyx Health | By Onyx Health | 31st March 2023

Why endometriosis is our first step towards prioritising men & women’s health at Onyx Health

Read Time: 3 minutes   Every March, people unite to show their support for women affected by endometriosis. It’s a condition that can have...

Design | By Onyx Health | 28th March 2023

R&D in endometriosis is painfully slow

Read Time: 8 minutes   Despite affecting an estimated 10% of women, girls and individuals with a womb, of reproductive age worldwide, progress in...