Engaging educational resources
Having convened a multidisciplinary advisory group of paediatric haematologists, nurses, psychologists and patient advocates to discuss the issue, Onyx Health created a patient and parent education campaign led by Super Sickle, an animated superhero character.
To aid with medical adherence and understanding of the disease, a Super Sickle Activity Book and Adherence Chart were created for the child. More importantly, Super Sickle education materials were created for specialist nurses to share. This is because once the treatment is prescribed, the nurse has a crucial role to play in talking to and working with parents, to ensure that they are comfortable with the treatment, and adherence is met. All materials are hosted on a Super Sickle educational platform, made available to everyone involved in managing the disease.